{"id":53705,"date":"2023-07-27T10:00:00","date_gmt":"2023-07-27T08:00:00","guid":{"rendered":"https:\/\/www.fundacioires.org\/?p=53705"},"modified":"2023-07-25T13:05:32","modified_gmt":"2023-07-25T11:05:32","slug":"saf-servei-adopcions-ires","status":"publish","type":"post","link":"https:\/\/www.fundacioires.org\/ca\/saf-servei-adopcions-ires\/","title":{"rendered":"Qu\u00e8 \u00e9s el SAF? Descobreix-ho de la m\u00e0 del Servei d\u2019Adopcions de la Fundaci\u00f3 IRES"},"content":{"rendered":"\n

Des del Servei d’Adopcions d’Infants amb Necessitats Especials<\/strong> de la Fundaci\u00f3 IRES<\/strong>, volem donar visibilitat a una de les necessitats especials que pateixen els infants: la S\u00edndrome Alcoh\u00f2lic Fetal (SAF)<\/strong>.\u00a0 Amb el suport de l’Institut Catal\u00e0 de l’Adopci\u00f3 i l’Acolliment<\/strong>, volem destacar la import\u00e0ncia de brindar aquests infants un entorn estimulant, segur i carregat d’afecte per millorar la seva qualitat de vida i desenvolupament<\/strong>.<\/p>\n\n\n\n

El SAF \u00e9s una condici\u00f3 que afecta infants que han estat exposats a l’alcohol durant l’embar\u00e0s<\/strong>, provocant diverses alteracions en el seu desenvolupament<\/strong> f\u00edsic, mental, conductual i cognitiu. Aquest trastorn es manifesta amb una varietat de s\u00edmptomes, incloent-hi retard en el creixement, malformacions facials i dificultats en l’atenci\u00f3, concentraci\u00f3, socialitzaci\u00f3 i comportament.<\/p>\n\n\n\n

A vegades<\/strong> diagnosticar aquest trastorn \u00e9s dif\u00edcil<\/strong>, ja que la seva simptomatologia es confon amb d\u2019altres com el TDAH. A m\u00e9s, els trets facials no sempre estan presents o s\u00f3n tan evidents.\u00a0 No hi ha una prova espec\u00edfica que permeti confirmar o no el diagn\u00f2stic. El que facilita des d\u2019un principi \u00e9s saber si hi ha hagut consum d\u2019alcohol durant la gestaci\u00f3, informaci\u00f3 que no sempre es t\u00e9.<\/p>\n\n\n\n

Aquesta s\u00edndrome pot presentar dificultats significatives en la vida quotidiana de l’infant i la fam\u00edlia, com ara prendre decisions, raonar i gestionar les seves emocions. \u00c9s important que les fam\u00edlies adoptives s’informin sobre el SAF i el que implica per proporcionar l’entorn adequat i el suport emocional que aquests infants necessiten<\/strong>. Mantenir rutines, ser concrets i repetir les coses poden ser pautes \u00fatils per acompanyar-los en el seu creixement.<\/p>\n\n\n\n

Con\u00e8ixer el problema i poder posar-hi nom facilita a l\u2019infant i la fam\u00edlia entendre el que passa<\/strong>. El desconeixement provoca que no s\u2019entenguin algunes conductes o comportaments i genera m\u00e9s problemes i frustraci\u00f3. El que necessita l\u2019infant \u00e9s comprensi\u00f3 i suport<\/strong> i per aix\u00f2 tamb\u00e9 \u00e9s important que l\u2019escola ho s\u00e0piga i treballi conjuntament amb la fam\u00edlia.<\/p>\n\n\n\n

Un dels recursos que es recomana \u00e9s l\u2019ofert per l’Hospital Cl\u00ednic de Barcelona que acompanyen a la fam\u00edlia en el diagn\u00f2stic, tractament i seguiment del SAF a trav\u00e9s de la Unitat de Trastorn d’Espectre Alcoh\u00f2lic Fetal (UneSAF)<\/strong>. Aquest equip multidisciplinari est\u00e0 format per professionals experts en la mat\u00e8ria, com pediatres, psic\u00f2legs i logopedes, i t\u00e9 com a referent el Dr. \u00d3scar Garc\u00eda-Algar, reconegut a escala nacional i internacional.<\/p>\n\n\n\n

Encara que el SAF provoqui una lesi\u00f3 permanent en el cervell, les fam\u00edlies adoptives poden oferir aquests infants un entorn d’amor i suport que afavoreixi el seu desenvolupament<\/strong>. Tot i que no hi ha un tractament espec\u00edfic o una cura, es pot proporcionar ter\u00e0pia psicol\u00f2gica i conductual, adaptacions a l’escola i a casa, per millorar la seva qualitat de vida i ajudar-los a superar els desafiaments diaris.<\/p>\n\n\n\n

\u00c9s important parlar amb els fills\u00a0 del trastorn que tenen, ja que els ajudar\u00e0 a entendre el que els hi passa i com funciona el seu cervell. El TEAF (Trastorn de l\u2019espectre alcoh\u00f2lic fetal) \u00e9s una part de qui s\u00f3n, per\u00f2 no els invalida mostra-li quines s\u00f3n les seves habilitats, destreses i capacitats. Es important acompanyar a l\u2019infant a gestionar tots aquells sentiments<\/strong> que li generi tenir SAF.<\/p>\n\n\n\n

A Espanya, neixen aproximadament 5.000 nens amb SAF cada any, amb una incid\u00e8ncia m\u00e9s alta entre els infants adoptats de pa\u00efsos de l’est. Cal destacar que aquest trastorn no afecta nom\u00e9s a infants nascuts a l’estranger, sin\u00f3 tamb\u00e9 a infants nascuts a Catalunya. Donar l’oportunitat a aquests infants de tenir una fam\u00edlia que els estimi i els recolzi \u00e9s una forma de canviar vides i oferir un futur esperan\u00e7ador.<\/p>\n\n\n\n

A la Fundaci\u00f3 IRES, creiem en l’adopci\u00f3 com una oportunitat tant per donar amor com per rebre\u2019l, especialment quan es tracta d’infants amb Necessitats Especials<\/strong>, com els diagnosticats amb la S\u00edndrome Alcoh\u00f2lic Fetal<\/strong>. Volem compartir coneixement per a inspirar les fam\u00edlies a acollir aquests nens i nenes amb tot l’amor i suport que es mereixen. Cada infant \u00e9s \u00fanic, amb les seves pr\u00f2pies habilitats i capacitats, i \u00e9s important que siguem la seva font d’afecte i comprensi\u00f3 mentre creixen i afronten els desafiaments que els hi presenta la vida. Amb el suport de l’Institut Catal\u00e0 de l’Adopci\u00f3 i l’Acolliment, podem fer la difer\u00e8ncia en la vida d’aquests infants i brindar-los un futur ple d’oportunitats i felicitat.<\/p>\n\n\n\n

A la Fundaci\u00f3 IRES Busquem Fam\u00edlies Especials com vosaltres. Informa\u2019t a : Busquemfamiliesespecials.org<\/a><\/p>\n\n\n\n

\n
Busquem Fam\u00edlies Especials! <\/a><\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

A trav\u00e9s d\u2019una s\u00e8rie d\u2019articles i continguts que anirem compartim als nostres canals, des del Servei d\u2019Adopcions d\u2019Infants amb Necessitats Especials volem donar visibilitat a les malalties que afecten els nens i nenes del servei.<\/p>\n","protected":false},"author":7,"featured_media":53706,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[19],"tags":[155],"class_list":["post-53705","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ires-blog","tag-adopcions"],"yoast_head":"\nQu\u00e8 \u00e9s el SAF? 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